![[IMAGE] Cystic Fibrosis Trust & Kids Logos](images/raising-funds.jpg)
Why raise funds for the CF Trust and CF Kids
The CF Trust and CFKids are charities close to me because my brother has the disease, and I am a carrier which means I have a one in four chance of giving birth to a child with CF if my partner is also a carrier. For a CF sufferer they are reminded of their disease every day, as they have to take medicine with their food and do physio among other things, depending on how severe their CF symptoms are.
The CF trust raises money for research into ways to cure the disease, whereas CF Kids of Portsmouth helps the kids of Portsmouth with CF with things that they need that the NHS cannot provide, along with other things to make their stay at the hospital more enjoyable, as CF sufferers sometimes have to be in hospital for months at a time.
The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis (CF). They fund research to treat and cure CF and aim to ensure appropriate clinical care and support for people with Cystic Fibrosis.
Their objectives are to:
- Fund medical and scientific research to develop a cure and provide effective treatments for Cystic Fibrosis.
- Ensure appropriate clinical care for those with Cystic Fibrosis.
- Provide information, advice, support and, where appropriate, financial assistance to anyone affected by Cystic Fibrosis.
visit their website here (www.cftrust.org.uk)
Cystic Fibrosis Kids was set up by friends and family of children with CF in the Portsmouth and surrounding areas. They are not government funded and purely rely on fundraising and donations.
They work closely with the CF Team at QA hospital and aim to provide equipment for the hospital and in the community that will promote exercise and benefit a CF child with their daily quality of life. This includes:
- trampolines - a well known form of exercise for children with CF
- exercise equipment in the home and at the hospital
- up to date nebulisers cutting the running time from 20 minutes (NHS provided nebuliser) to just 4 minutes
- hospital equipment to detect and identify the patients current medical situation
- inpatient facilities including unlimited use of canteen food, vouchers for local take away restaurants, dvd account, entertainment packages, and many more
They rely on feedback from the hospital and patients to ensure the correct amenities are being identified and utilised.
visit their website here (www.cfkids.org.uk)
Becki Short xxx